Thursday, August 7, 2014

What faith can do.

Life has been slightly crazy with the three kids this summer, from Caitlyn getting stranded in Houston International Airport flying to Milwaukee, Vacation Bible Schools, and just STUFF.  Summer vacation is winding down, and school is about to begin again, so I figured now would be a great time to update the blog.

Jeremy and I were asked to give our faith testimony at a church in our area-that's a HUGE honor, and a daunting task.  Our family and friends are familiar with our journey with Squishy Baby, and this church heard of her fight, and immediately began praying for her, and standing in agreement that God would take charge of her heart, and the repairs would be done. 

Anyway, Jeremy said they wanted to hear about how our faith in God held us and carried us through her diagnosis and first heart repair.  He was asking me which Scriptures we (meaning I) stood on, as his testimony through it all was "God will heal her in His way."  I, on the other hand, found my five Scriptures, and held tight to them.  I blogged about a few of them in January, when I was really struggling with the message of "if you want your healing, believe for it, and claim it."   (http://utphallfamily.blogspot.com/2014_01_01_archive.html)

The beginning of my story is this: "I knew you before I formed you in your mother's womb. Before you were born I set you apart..."Jeremiah 1:5 (NLT).  God knew what the enemy was going to do to Asher before she was born, before I was born.  We know that He couldn't intercede, and prevent it, but He knew that we would be strong enough in faith to handle the news when it came.  I thank Him every day that He chose me to be her mother, and put her in my life, heart condition and all.  Her diagnosis stretched my faith, and I often wonder what could have happened if she had been born to someone with less faith, or less ability to handle this kind of diagnosis.  God knew what He was doing when He sent her to us.

Psalm 127:3 "Children are a gift from the LORD; they are a reward from him." (NLT) 
I know that all my children are gifts.  I also know that as a parent, there is no way I'd give my kids a gift, knowing that if something were to happen, I wouldn't be able or willing to do whatever it took to repair it.  God knew the day would come when we'd learn of Ash's condition, and He was waiting for us to turn to Him so He could work his wonders on her.

Psalm 147:3 "He heals the broken hearts and binds up their sorrows." (Aramaic Bible in Plain English)  At the end of her surgery to repair the Coarctation of the Aorta, I stumbled across a vendor that makes stuffed animals that have the same scars and repairs that the child does, Healing Helpers (www.healinghelpers147.com).  I was not even aware of this verse until I started corresponding with her to order Ash's Helper.  God is in the healing business, still.  Asher may not have had the supernatural healing that we are told we're supposed to believe for, but I know that God gave gifts to the surgeon that operated on her, and all the staff that handled her care, to repair the issue that was life threatening.  That's good enough for me.  There was such a HUGE sigh of relief when she came out of surgery, then absolute wonder when she began to put on weight, and her skin tone turned pink, instead of the pale and ashen tone that she had been leading up to surgery.  There was the emotional healing, too; I was not angry and bitter and scared anymore, and the first time I saw her post-surgery was the last time I cried over her condition.  God had done exactly what we had been believing for-He healed her in His way.

"Even when the sky is falling
I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do"-Kutless








All of Me

We are nearly 5 months post-surgery, and Squishy is doing a phenomenal job recovering.   Within the first 4 weeks post-surgery, she had gained 3 pounds, and grown about 3 inches in height.  She's now hovering around 20 pounds, and she turned 19 months old a few weeks ago.




We saw a new cardiologist, Dr. Kiel, back in April, and we really enjoyed him.  He seemed a bit out there, but he entertained Ash, and by the end of her checkup, she was trying to mimic his Donald Duck impersonation.  We don't go back until mid-October for more tests, including another echo and EKG.  Her last checkup showed a gradient of about 30% in her subaortic membrane, and about a 11% in her mitral valve.  Her coarc has been healing beautifully, and her aortic valve was flowing wide-open on her last echo.


We've been working on settling back into our routines, too. Jeremy came off active duty orders at Barksdale mid-April, and has been back at the S.O. full time since then.  He still does Reserves, for the insurance at this point.  Squish's hospital bills alone for the procedure at Arkansas Children's has totaled well over $120,000.  We paid nothing out of pocket.  Locally, her cardiology appointments and prescriptions have been in the $3,000 range, and we've only paid $100 out of pocket.  We can't afford to give up Tricare, and at this point, I wouldn't want to-it's been such a huge benefit to have it through all of this.


April flew by-we got to experience our first motorcycle officer's rodeo with Jeremy in Texas.  Seeing him ride was incredible!  I've never been more proud, and I got to see how talented he is on his motorcycle.


Cait and Bub are doing well, too.  Bub finished his first year of preschool, and asks at least once a week if today is the day that he gets to go to school.  August can't get here soon enough.   Cait graduated middle school, and has officially moved up to junior high, making the dance team along the way.


 Summer has been off to a busy start for us.  We had Jeremy's mom, step-dad, sister, her husband, and our nieces come down from Milwaukee and spend a few days with us.  I've never been more tired in my life, but I wouldn't trade those 4 days for the world.  It was so fun to see our kids meet their cousins, and have them running crazy in our house, outside, and playing on the inflatable slide.  Bub turned 4 in May, and we had a dinosaur-themed party, again.   The kids have been swimming machines-Ash didn't enjoy it at first, but she's turning into a little water bug, right under my nose.


I haven't been doing as much studying as I would like, but I have been listening to a lot of music at work, and I heard the song "All of Me" by Matt Hammitt the other day.  Oh, my goodness.  He wrote the song when his child was diagnosed with a pretty significant heart defect, and the words just hit home. 


That's pretty much all that has been going on for us.  God's still working His wonders, and He's got big plans for my family.  I can't wait to see what comes next!


-K


"All of Me" by Matt Hammitt


Afraid to love, something that could break
Could I move on if you were torn away?
And I'm so close to what I can't control
I can't give you half my heart and pray He makes you whole

You're gonna have all of me
You're gonna have all of me
'Cause you're worth every falling tear
You're worth facing any fear

You're gonna know all my love
Even if it's not enough
Enough to mend our broken hearts
But giving you all of me is where I'll start

I won't let sadness steal you from my arms
I won't let pain keep you from my heart
I'll trade the fear of all that I could lose
For every moment I'll share with you


You're gonna have all of me
You're gonna have all of me
'Cause you're worth every falling tear
You're worth facing any fear

You're gonna know all my love
Even if it's not enough
Enough to mend our broken hearts
But giving you all of me is where I'll start

Heaven brought you to this moment, it's too wonderful to speak
You're worth all of me, you're worth all of me
So let me recklessly love you even if I bleed
You're worth all of me, you're worth all of me

You're gonna have all of me
You're gonna have all of me
'Cause you're worth every falling tear
You're worth facing any fear

You're gonna know all my love
Even if it's not enough
Enough to mend our broken hearts
But giving you all of me is where I'll start

You're gonna have all of me
'Cause you're worth every falling tear
You're worth facing any fear

You're gonna know all my love
Even if it's not enough
Enough to mend our broken hearts
But giving you all of me is where I'll start
Is where I'll start